Sherry just reminded me that I have not posted to let everyone know we made it home safe. The ENT visit ended with the above picture. This is what a 3 1/2 year old says after 36 hours of non-stop travel and doctor’s appointments 658 miles away from home. “Can we go now? I have […]
Archive for May, 2008
We just confirmed an ENT appointment at 12:30. Prayer and persistance works.
We had a pretty good night. As I said yesterday we did not get into the Ronald McDonald House. They were full, but helped make a reservation that was MUCH cheaper than anything I could find on my own within a $10 cab ride distance of the hospital. As you can see from the picture […]
We spent about an hour and a half in the genetics cetnter. It seems we have done pretty well at getting Caden to all the specialists that they would normally recommend. Their observations of Caden left them impressed with his growth and cognative development. Their primary concern, once the heart and scoliosis issues are ironed […]
We are on board the SEPTA rail system headed to University City. It’s a $7 ride for us. We should find out if we have a spot at the Ronald McDonald House within the next couple of hours. Caden is LOVING this train ride. He is glued to the window pausing every few minutes to […]
The flight went great. Caden slept most of the way and showed no sign of discomfort. Praise God! Caden is currently standing at our window as we wait to exit the plane. He is loving the other airplanes he sees taking off. We will update again later.
We got through TSA fine. Caden is in his seat and very excited. Taking off in minutes. More later.
It has been a busy week preparing for the trip to CHOP. Caden is almost as excited as me. He will get to go in the green car with Daddy on Monday morning. That in itself creates a smile that you can’t pry off with a crowbar. Then Caden will get to board a plane […]
We have secured appointments with two clinics at the Children’s Hospital of Philadelphia (CHOP). One appointment with the genetics counselor in the 22Q and You center and one with the orthopedics clinic. The orthopedics clinic is the main one we are after for a number of reasons. The primary reason for the CHOP orthopedics visit […]