It has been a busy week preparing for the trip to CHOP. Caden is almost as excited as me. He will get to go in the green car with Daddy on Monday morning. That in itself creates a smile that you can’t pry off with a crowbar. Then Caden will get to board a plane for his first flight ever. It will probably take days to settle him down from the joy of that experience. He loves planes and as much as I wish I could have taken Caden for his first flight in a little Cessna the way I did with Riley, this is almost as good. While Sherry really wants to be there to meet and hear what the doctors have to say first hand, I know she is happy for me getting to share this first airplane ride with Caden. I plan to try and conference Sherry into the talk with the orthopedic surgeon so she can participate in that conversation.
The fact that this trip is so important and packed with so much fun, I have decided to live blog it right here on Caden’s Page. Beginning early Monday morning I will post here on Caden’s Page throughout our trip to Philadelphia. You can follow along and read first hand how much fun Caden and I are having on our trip shortly after exciting things happen.
All that said, today we faced a fever of 102.3 with Caden. He has tugged at his ear a little in the past couple of days and Sherry has been giving drops. Please lift him up in your prayers this weekend as we prepare for this trip.
Prayer Requests:
Please pray with us for:
- Caden to be protected from fever, infection, or any other illness
- Safe and smooth travel for Caden’s first airplane ride
- Favor with the TSA security screeners
- The ability to conference Sherry into the conversations with doctors
- A opening at the Ronald McDonald House Monday night (This will save nearly $150)
- An appointment with ENT or anyone at CHOP who can address swallowing issues
- Strength, hope, and faith for our whole family (Sherry and I are realizing that the pending medical issues with Caden are affecting everyone in the house more than we thought. This has all been especially taking a toll on the two of us.)
I want to thank the folks at Plantation Pediatrics for providing a letter of medical necessity for this trip. While the letter is not required, it is recommended when traveling with things like a pacemaker, foot braces, suction machine, feeding tube, and all the gear required to deliver nutrition and hydration through a feeding tube.
Email Subscription Changes for ALL
Even if you current get emails from me when this page is updated, you need to read this. I am changing the way update emails are delivered. In the near future I will stop sending manual emails when updates are made to this site. This change will require that EVERYONE re-registers for email updates using the form below. I cannot transfer your email into the new system automatically. This new delivery method is an opt in email system. Please enter your email in the form on the left and click the subscribe button. You will be prompted to enter a code that appears on the screen to help prove that you are a human. Then you will receive an email that you must respond to in order to complete the process. This new system will work just like the email subscription process on GrowingKids.org. You will automatically receive an email in the morning after a new post has been made to this site. If you like more instant gratification then you can always subscribe to our RSS feed using a feed reader and get more real time updates. Just click the “Subscribe to our feed link” here or in the side bar for that option. Want to know what a RSS feed is? Don’t be embarrassed if you don’t know. Everyone has to ask at some point.