Archive for September, 2008

Sunday, September 28th, 2008

Caden continues to do great. His activity level continues to increase and as well as the frequency of smiles. The following picture was captured today while Caden was entertaining himself with a little musical instrument. The above picture does show some indications of one of Caden’s largest problems which is a very itchy rash that […]

Friday, September 26th, 2008

Caden arrived home at approximately 1:00pm this afternoon (Friday 9/26). PRAISE GOD! So how does a kid go from the picture on the left (taken Monday 9/22) just after leaving the operating room where he received a major open heart surgery to the picture on the right (taken Friday 9/26) in just four days?  I […]

Thursday, September 25th, 2008

A room came available and we were moved to 7C just before lunch time today (Thursday).  We are on the 7th floor of the Children’s Hospital, room 784.  We are blessed with our favorite nurse that has known Caden from birth.  She even remembered Riley’s name! We are enjoying the freedoms of being out of […]

Wednesday, September 24th, 2008

Caden is doing really good today.  He is still requiring some pain management and has had a little difficulty with his tube feeds.  Nothing surprising at all.  Please pray for his continued healing, rest, and overall comfort. The Problem MUSC Children’s Hospital is overloaded with kids right now so we have been told to expect […]

Wednesday, September 24th, 2008

I am sneaking a quick post using the browser on my Blackberry to share the great news. Caden has been cleared to move out of the ICU and into the step-down unit. We are just waiting on a bed. I will post a room number once we get moved. Caden only has a chest drain […]

Wednesday, September 24th, 2008

I tried to get back into the PCICU after shift and was DENIED access.  Caden’s nurse sent a messenger out to tell me that they were removing lines.  I am assuming that means both the arterial and central lines mentioned yesterday.  This will give Caden great joy.  He has been asking to be held since […]

Tuesday, September 23rd, 2008

Caden was taken off the respirator at about 10am this morning (Tues. 9/23) and he has had one chest drain tube removed.  He has been awake some today and has been responding to Sherry and me by nodding his head and signing with the one hand that does not have a line in it.  He […]

Tuesday, September 23rd, 2008

I talked to Caden’s nurse at about 5:30 this morning and Caden had a good night.  There were a few spells of Caden trying to wake up, but nothing too exciting.  “Nothing too exciting” is what you want in the first 24 hours after a day like yesterday.  The nurse full expects Caden to be […]

Monday, September 22nd, 2008

Caden is stable and we are all about to be sleeping.  Caden’s night shift team is very impressive and super sensitive to our requests to be notified immediately if there is any chance that Caden will be allowed to wake up before morning shift change.  Caden is in an isolation room that will allow for […]