Praise God! The good news results of the biopsy of my (daddy’s) esophagus came back late this afternoon. The nurse left me a message simply saying that everything came back fine from the biopsy. The down side is that the procedure I had last week has not accomplished the task of stopping the sick spells I have been having on and off for about a year and a half. These stomach bug type spells drove me to the battery of tests and eventual the botox injections into my lower stomach outlet to intestines due to an abnormal gastric empty study. I had another stomach bug type spell lasting about 12 hours this past Monday night. That was just six days after my procedure.
If you follow me on Twitter or Facebook then you know Caden went to the ER over the weekend. Some swelling popped up on his back on Sunday morning. I called the surgeon and they asked that we bring Caden into the ER at MUSC for evaluation. They drew blood and decided after some discussion to let us go home and instructed us to monitor for fever and worsening of the swelling. Well later that night (2am) a fever of 102.3 appeared. I called the surgeon and actually got the exact same guy who examined Caden earlier. He said to make sure the fever came came down with meds and then call the clinic if the later morning around 9am. Caden’s surgeon wanted to see Caden so we took him in to MUSC on Monday. They drew fluid of the swollen spot and sent ti to the lab. The surgeon said it looked like old blood that was probably working its way to the surface due to Caden’s increased activity.
As for activity, Caden is now sitting, walking and even doing a little shuffle type run (with a big grin on his face). However he is favoring his left side and limping on his right foot just a bit. His gate (stance and walk position) is different than before the surgery. Not only is he limping on his right foot but his right foot is turned out slightly. This seems to have gotten worse over the past day or two. Caden is scheduled to see the orthopedic surgeon again on Monday and we will ask why this condition exists and seems to be worse in recent days.
We (Sherry mostly since she is home all day) has been experiencing difficulties with Levi’s feedings. He has been completely on formula since well before Caden’s surgery, but has recently started crying after about 1 or 2 ounces into a feeding. Burping him, and warming or cooling the formula helps at all. Sherry has seen the pediatrician about this and they along with us are a bit baffled. They think maybe his tummy is a little upset but not enough to cause noticeable reflux. He has been Prevacid since before switching to the bottle.
Oh…Sherry did complete the process to get Caden a disabled parking placard. He had to get a SC State ID card first as I suspected and in the process they made him “make his mark” for a signature on the card. Sherry helped him “make his mark” and it is a very cute ID card. Now Riley wants one. 🙂
In super fun and exciting news…This coming Monday the 18th of October is a Big day for Riley as he turns 8 years old! Please join us in wishing Riley a very Happy Birthday!
Thanks for checking Caden’s Page. Your prayers and support for Caden and our entire family are greatly appreciated.
PS…I posted a very good article on GrowingKids.org tonight from Mike and Bev Linder about parenting a special needs child. It is good encouragement for all parents.