Archive for the '22q11.2' Category

Wednesday, October 31st, 2012

Caden was hospitalized with pneumonia a few days ago. He has been inpatient at MUSC for four days now. He has shown signs of improvement, but there have been some ups and downs in the past two days. The up side is that we have not seen a fever reach 105 in almost three days […]

Wednesday, April 11th, 2012

Caden is going in for an adjustment to the VEPTR rods in his back to treat scoliosis. Caden originally had rods placed in his back in September 2010. The pictures above are the before and after fromt he original surgery in 2010. The rods on the right have been in Caden’s back since 2010. The […]

Wednesday, January 25th, 2012

Caden’s condition is improving after a rough few days. He started running fevers well above 104 on Saturday. The fevers persisted his need for oxygen began to increase. He has been on oxygen 24/7 since Sunday evening. I listened to Caden with a stethoscope in Sunday and heard crackling sounds in his lower elft lung. I am […]

Wednesday, November 2nd, 2011

Seven years ago today at the Medical University of South Carolina our family was blessed with a new addition. Caden was born via C-Section early that Tuesday morning as the presidential election began that would result in the re-election of George W. Bush to a second term. The picture to the right is of Sherry […]

Thursday, September 22nd, 2011

It is not often that we can say it has been a really good day in the hospital, but this one ranks well above average for sure…even though we are in the ICU. Caden’s surgery was completed in record time and he is doing very well with the recovery process. Praise God! Thank you for interceding on […]

Friday, August 19th, 2011

Caden was diagnosed with pneumonia again on Monday. He had only been off oxygen during the day for a few weeks after recovering from the June 21st diagnosis of pneumonia. The photo of the x-ray on the right was taken after the fall he and Sherry had at the aquarium during the week of the […]

Wednesday, January 19th, 2011

Caden went to the PICU after surgery yesterday. This was mostly precautionary.  Sherry and I did not know going into this scoliosis VEPTR Rod process would require an ICU stay every time Caden has an adjustment.  Come to find out this is the norm for this particular surgeon even when the surgery is less invasive. […]

Monday, January 17th, 2011

Surgery is schedule at 6:15AM to repair Caden’s VETR Rods.  Caden has been experiencing significant pain related to the spot on his lower back near the waist line. (See photo)  The surgeon will replace the brace attached to Caden’s pelvis and adjust the rods as much as possible based on Caden growth since the rods […]

Tuesday, November 23rd, 2010

Caden had his first appointment with the infectious disease clinic at MUSC today. The appointment came at a good time. The nights have been long and hard for Caden recently. His secretions have increased and begun to turn colors. That almost always means he is headed for fever and/or lower oxygen saturation numbers. And that […]