Caden’s Page

Caden was taken to the MUSC emergency room today due to low oxygen saturation (SAT), high fever, high heart rate, and increased secretions.  We had to put him on oxygen last night and ended up increasing the amount to 3 liters of oxygen by morning.  We called the pulmonary doctor on call before taking him […]

Caden had his first appointment with the infectious disease clinic at MUSC today. The appointment came at a good time. The nights have been long and hard for Caden recently. His secretions have increased and begun to turn colors. That almost always means he is headed for fever and/or lower oxygen saturation numbers. And that […]

We have received some inquiries on the results of the visit to Cincinnati Children’s Hospital.  We did visit Cincinnati Children’s as planned during our recent vacation. We saw two clinics. We didn’t really hear anything new in terms of ideas to get Caden to swallow from the first clinic (ENT).  Caden’s local ENT doc had […]

Caden has been referred to the Aerodigestive and Sleep Center at Cincinnati Children’s Hospital. Caden’s local ENT (Otolaryngology / Head and Neck Surgery) specialist has reached the end of his tool belt in terms of treating the swallowing challenges that Caden has battled since birth.  Caden will be six years old in just a few […]

The big guns are antibiotics not antiaircraft. This is hospital night five that started Monday night due to dehydration.  Caden starting having fevers above 103 in the early AM Wednesday.  Today the fever showed up in the early evening. He has had enough fevers along with some noise (coarseness not wheezing) in his lungs to […]

Caden has been admitted to the hospital for the third time in as many months.  This time for dehydration.  All but one person who has been in our home in the past four days has come down with some form of a nasty stomach bug that lasted 12-24 hours.  JJ, Riley and I had nausea, […]

If you have been following me on Facebook or Twitter then you know that Caden has been hospitalized since Friday.  He has never completely kicked the pneumonia from his last hospitalization in August that was initially caused by H1N1 (Swine Flu). Caden’s condition is improving and I expect he may get off oxygen sometime tomorrow.  […]

I think I mentioned last night that I initially resisted when the ER doctor said he wanted to admit Caden and put him on IV antibiotics.  My initial reaction had more to do with protocol than anything else.  Oh by the way…the protocol changes depending on where you are in the hospital and who your […]

We saw one of our favorite doctors today at MUSC. This is Caden’s ENT (Ear Nose & Throat) doctor. We talked about swallowing mostly. We are still facing a recommendation of a myotomy which is a surgical procedure to cut the muscle tissue of the upper esophageal sphincter (UES). The ENT says that this physical […]