Caden came off oxygen during the day on Sunday 11/11/12. That was exactly one week after being discharged from his 8-day hospital stay at MUSC. Now that he is well we have to turn our attention to his back. Caden has VEPTR rods (adjustable Titanium rods) implanted in his back to treat scoliosis. These rod […]
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Monday, November 12th, 2012Caden is improving but not out of the woods yet. Caden has been fever free for about 36 hours with the exception of a few low-grade fevers. His need for a oxygen has decreased and he has actually been off oxygen for a few hours everyday for the past three days. Tonight is night 7 […]
The high fevers returned yesterday peaking out at 105.4F. Already this morning we have seen a 104 fever. On top of that Caden’s IV came out yesterday morning and he had to be poked in the other arm to get a new IV and it was not an easy stick for him. In my last […]
Admitting Caden to the MUSC Children’s Hospital was a good move. Even though we have a difficult time getting rest while hospitalized there are some things that we just can’t do at home. Most importantly Caden has been getting some IV antibiotics that are not available for kids in oral or g-tube delivery methods. He has […]
Caden has been hospitalized for pneumonia and has tested positive for a really nasty virus. They think the pneumonia is bacterial given they way it has presented itself. Caden has been hospital and illness free for over six months. The one night he spent in the hospital this year was for recovery from back surgery. We […]
Caden is going in for an adjustment to the VEPTR rods in his back to treat scoliosis. Caden originally had rods placed in his back in September 2010. The pictures above are the before and after fromt he original surgery in 2010. The rods on the right have been in Caden’s back since 2010. The […]
Caden continues to improve. He has been fever free since Thursday when they began treating him for pneumonia and his need for oxygen during wake hours in decreasing. However we are proceeding with caution. Caden is still on two separate IV antibiotics and neither of them comes in an oral form. So a discharge will […]
Caden has had a rough week to say the least. He slept very little Wednesday night as he battled a fever that peaked at 104.4. His respirations were 60-70, heart rate was averaged in the 160s for over an hour and hit 170 at times, and he required 2.5 liters of oxygen just to keep his saturation […]
Caden is improving after a very eventful 24 hours. Last night at about 3AM Caden’s O2 sats dropped rapidly and continued to drop until we got him stabilized at about 5AM on 8 liters of oxygen via  a mask. He went to bed earlier in the evening on 1/2 liter of oxygen via nasal cannula and took the dive […]