http://www.hoei.com/caden/blog Thu, 15 May 2008 02:45:40 +0000 http://backend.userland.com/rss092 en Sherry just reminded me that I have not posted to let everyone know we made it home safe. The ENT visit ended with the above picture. This is what a 3 1/2 year old says after 36 hours of non-stop travel and doctor's appointments 658 miles away ... http://www.hoei.com/caden/blog/2008/05/14/glad-to-be-home.htm We just confirmed an ENT appointment at 12:30. Prayer and persistance works. http://www.hoei.com/caden/blog/2008/05/13/got-ent-appointment.htm We had a pretty good night. As I said yesterday we did not get into the Ronald McDonald House. They were full, but helped make a reservation that was MUCH cheaper than anything I could find on my own within a $10 cab ride distance of the hospital. ... http://www.hoei.com/caden/blog/2008/05/13/a-night-in-philadelphia.htm We spent about an hour and a half in the genetics cetnter. It seems we have done pretty well at getting Caden to all the specialists that they would normally recommend. Their observations of Caden left them impressed with his growth and cognative development. Their primary concern, ... http://www.hoei.com/caden/blog/2008/05/12/met-with-22q-and-you-center.htm We are on board the SEPTA rail system headed to University City. It's a $7 ride for us. We should find out if we have a spot at the Ronald McDonald House within the next couple of hours. Caden is LOVING this train ride. He is glued to ... http://www.hoei.com/caden/blog/2008/05/12/train-ride-into-the-city.htm The flight went great. Caden slept most of the way and showed no sign of discomfort. Praise God! Caden is currently standing at our window as we wait to exit the plane. He is loving the other airplanes he sees taking off. We will update again later. http://www.hoei.com/caden/blog/2008/05/12/landed-in-philadelphia.htm We got through TSA fine. Caden is in his seat and very excited. Taking off in minutes. More later. http://www.hoei.com/caden/blog/2008/05/12/on-board-and-ready-to-go.htm It has been a busy week preparing for the trip to CHOP. Caden is almost as excited as me. He will get to go in the green car with Daddy on Monday morning. That in itself creates a smile that you can't pry off with a ... http://www.hoei.com/caden/blog/2008/05/09/getting-ready-to-go-fever-comes.htm We have secured appointments with two clinics at the Children's Hospital of Philadelphia (CHOP). One appointment with the genetics counselor in the 22Q and You center and one with the orthopedics clinic. The orthopedics clinic is the main one we are after for a number of reasons. The primary ... http://www.hoei.com/caden/blog/2008/05/02/headed-to-chop.htm The recommendation made on Wednesday was to proceed with the replacement of Caden's aortic valve.  The cardiologist is talking with the cardiothorasic surgeon to determine if this is a go or not.  I believe Sherry and I both or more at peace with this recommendation than just about anything we ... http://www.hoei.com/caden/blog/2008/04/28/cardiology-recommends-heart-surgery.htm