Archive for the '22q11.2' Category

Monday, October 19th, 2009

If you have been following me on Facebook or Twitter then you know that Caden has been hospitalized since Friday.  He has never completely kicked the pneumonia from his last hospitalization in August that was initially caused by H1N1 (Swine Flu). Caden’s condition is improving and I expect he may get off oxygen sometime tomorrow.  […]

Friday, October 2nd, 2009

The past 24 hours have been quite a ride for Caden.  He had a rough night last night.  He ran a fever of about 103.5 and required an above normal amount of suctioning.  Caden has had an increasing amount of greenish secretions this week and the full fever (above 101.5) justified Sherry taking Caden in […]

Tuesday, August 11th, 2009

I think I mentioned last night that I initially resisted when the ER doctor said he wanted to admit Caden and put him on IV antibiotics.  My initial reaction had more to do with protocol than anything else.  Oh by the way…the protocol changes depending on where you are in the hospital and who your […]

Sunday, August 9th, 2009

The flu has caused pneumonia for Caden.  We are being admitted to MUSC Children’s Hospital.  I resisted at first but I am not 100% due to my tooth ache.  He looks good and seems to feel good.  However pneumonia is not something you want to play with when you are already fighting 104 plus fevers […]

Sunday, August 9th, 2009

We were trucking along pretty good this weekend considering the circumstances.  Caden has had 103-104 fever on an off since Thursday.  Normal stuff for the flu.  Today we went out in the yard and even let JJ open his birthday presents out on the screened porch.  He also got to make a mess of his […]

Thursday, May 7th, 2009

The ENT procedures went extremely well for Caden on Tuesday.  Caden recovered well and did not even crash for an afternoon nap.  As a matter of fact, his physical therapist forgot that Sherry had canceled for Tuesday afternoon and she showed up on our doorstep at about 4PM.  Caden seemed to be wired for speed […]

Sunday, April 5th, 2009

I know it has been a while since we posted.  I want to post more, but I don’t want to bore you with our everday live.  Our life has its unique little struggles but our life goes on.  I have done a lot of thinking in recent days about how our circumstances impact each of […]

Friday, March 13th, 2009

We recently had visits with two of Caden’s doctors. The ENT visit was to discuss getting an ear tube replaced and potentially removing Caden’s adenoids. They will also get a culture of Caden’s sinuses and maybe even clean them out while he is under anesthesia. The ENT is waiting on us to schedule this one. […]

Wednesday, February 11th, 2009

We took Caden in for a visit with the MUSC orthopedics surgeon on Monday. The official word on the MRI is that Caden’s spine is healthy. They did order an x-ray on Monday that revealed a slight progression in the scoliosis curve.  The new measurement is basically about 59 degrees which is up from 54 […]