Caden’s Page

This is Caden’s Page and not Josiah’s page just in case you were wondering. Much fuss has been given to Josiah in recent weeks, but business is picking up for Caden. During the month of October we will see more specialist in one month than Caden has seen in over a year. This week we […]

I got an email today from a blogger friend reminding me that I had not posted about how Caden’s appointments went last week. The short version of the story is that the MBS is still showing no signs of swallowing functionality. The feeding via g-tube is still in play for all of Caden’s nutrition and […]

First off let me say that everyone is doing pretty good. I have gone back to work this week and Grandma is in town helping Sherry out with the boys. Josiah is growing like a weed. More on that in a minute. Caden has a big day on Tuesday. He will get his first MBS […]

Caden is doing great after two weeks of recovery. We are scheduled to visit the ENT doctor for a follow up on Monday afternoon. Caden did go through several days with some pretty nasty congestion. He got a fever one night late last week but it was easily knocked out with OTC medication. Caden was […]

Not only do we remain in the hospital, but we were moved to a very familiar place in the Children’s Hospital. We are back in 7C, the pediatric cardiology unit. It was about mid-night last night when the charge nurse over on 8D came and asked me if I would be willing to move to […]

The bleeding continued throughout the night.  The bleeding is very slow, but concerning enough for the doctor to want to keep Caden one  more day.  Caden’s attending ENT doctor will not be in the hospital until later today so he may change the plan once he sees Caden in person.  Right now I feel better […]

It was an eventfully day here at MUSC. I wrote a few emails today to those who subscribe to the email updates for Caden’s Page. I was unable to post directly to the blog for a while. Below is the majority of what I wrote today. Scroll to the bottom of this post for the […]

We have a time for the surgery tomorrow. The show time is 9am in the MUSC main (adult) hospital surgery check in. The surgery will actually begin somewhere around 10:30. The surgery procedure will require an inpatient stay. The procedure being performed is called a sphinterplasty. It is expected to improve speech and swallowing. The […]

We are one week out from the sphincterplasty. I have been looking for some on line references that give a graphical illustration of what this surgery is supposed to do. I have not had any luck. Caden has been doing pretty good and we are praying that he remains illness free so that the surgery […]