Caden’s Page

Caden was scheduled for back surgery tomorrow morning. We cancelled the surgery due to Caden being sick. He was diagnosed with pneumonia last Monday August 15th and was actually on the mend until Wednesday of this week.  He had gotten to the point over the weekend where he could be without oxygen during the day with his SATS holding […]

Caden was diagnosed with pneumonia again on Monday. He had only been off oxygen during the day for a few weeks after recovering from the June 21st diagnosis of pneumonia. The photo of the x-ray on the right was taken after the fall he and Sherry had at the aquarium during the week of the […]

Caden has been home from the hospital for a few days now. Just before discharge we had a visit from a very strange looking doctor from the MUSC Pediatric Neurology department. At first glance you might think someone from the psych ward stole a lab coat and was playing pranks.  This guy had glasses as […]

Caden was diagnosed with pneumonia during and ER visit yesterday. Caden took a turn for the worse this morning after he got up. Caden got to a point where he was requiring the maximum oxygen that our home concentrator equipment could provide which is 5 liters.  We have oxygen tanks and that can provide higher […]

Caden was taken to the MUSC emergency room today due to low oxygen saturation (SAT), high fever, high heart rate, and increased secretions.  We had to put him on oxygen last night and ended up increasing the amount to 3 liters of oxygen by morning.  We called the pulmonary doctor on call before taking him […]

Caden was discharged from the hospital this evening. He is still on about 2.0 liters of oxygen.  The oxygen is not related to the surgical procedure at all.  We had Caden on oxygen before the surgery.  Caden will see the infectious disease department again next week to see what might be the next step in […]

Caden went to the PICU after surgery yesterday. This was mostly precautionary.  Sherry and I did not know going into this scoliosis VEPTR Rod process would require an ICU stay every time Caden has an adjustment.  Come to find out this is the norm for this particular surgeon even when the surgery is less invasive. […]

Surgery is schedule at 6:15AM to repair Caden’s VETR Rods.  Caden has been experiencing significant pain related to the spot on his lower back near the waist line. (See photo)  The surgeon will replace the brace attached to Caden’s pelvis and adjust the rods as much as possible based on Caden growth since the rods […]

Caden has been out of the hospital for three days following his scoliosis surgery and we are finally getting back to “normal”. Life is a somewhat new normal for our family for at least a season, but normal none the less.  Caden has come out of this scoliosis surgery with a much slower recovery than […]