It appears that Caden’s g-tube was malfunctioning and causing him some discomfort. I got home today and Sherry asked me to look at it because it just did not look right. Per the instruction manual I tried deflating the balloon that holds the tube in place. This would tell me if the balloon had the correct amount of filler (sterile water). What I got in the syringe was not sterile water. It appears that the balloon failed(burst) and it was irritating Caden since it was not being held in the correct position by the balloon. I replaced the button style g-tube fitting with his old g-tube that we have as a spare. Sherry, bless her heart, was in about as much discomfort as Caden. She’s not a big fan of the tube changing process. It was all she could do to hold Caden’s hands out of my way (eyes closed) while I changed the tube.
I called MUSC to make sure I knew what to look for to verify the tube was placed correctly. The lady that works these issues gave me some concrete things to look for and then she said it sounded like I had done things just fine. Caden just finished his 8pm feeding a little while ago and did not blink from his sleep while getting fed. I will pick up a new button on Wednesday while at MUSC. The button style g-tube is a cool device and we like it much better than the old tube.
There have been no more signs of fever. It looks like we are on for Wednesday’s botox treatment. We do not have a time for the procedure yet, but we did not expect to get the show time until tomorrow anyway.
Please keep Sherry and me in your prayers in the next two days. We both tend to get very nervous when it comes to having invasive tests, surgeries, or procedures done. This botox thing is no different. They will be basically injecting a poison into Caden’s upper esophagus sphincter. (AES) This is very near to the vocal cords and muscles that are used to close off and protect the airway. Sherry openly admitted that the fear factor is sneaking in again. As many of you know this has been our toughest battle over the past year. Please pray for us to remember my favorite verse in the next few days.
For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind. 2 Timothy 1:7 (KJV)
Drakes
Please keep the Drakes in your prayers tonight as well. Mom is in the hospital again and having contractions. She is also dilating a little this time. A normal OB visit landed her in the hospital today for observation. She is at approximately 31 weeks in her pregnancy carrying twins. The Dad and I are going to Promise Keepers this weekend in North Charleston. God willing and the creek don’t rise.
God bless you all. Thank you again for your prayer and support.